(Multiple foci of FLAIR signal hyperintensity seen within the periventricular and deep white matter represents the sequel of moderate chronic small vessel ischemic changes, such as....)
What was most important?
How can I accomplish what I need with what could and probably will eventually happen.
If you look up each of those possibilities, they all have challenges of their own. After all that testing, to be left with nonspecific myopathy, progression will be needed for a more definite diagnosis, landing me in a trial for IBM, I walked away when I could. No medication was going to cure it, or stop what was happening. I continued filling out my research papers each year for that study, but I have not been back for further testing or evaluation. Over that time, with outside help for physical and occupational therapy, along with some great spiritual therapy, I am where I am today!
Some might say I wasted time!
A detour along any journey is most likely a possibility, in fact, I really did expect it sooner, so with that, as we (I am not alone on this journey) approach it, my tummy does get all tangled up inside.
Guilty, and for good reason.
3. Complete details haven't been worked out or resolved.
4. Sometimes I just like cliff hangers.
5. Not everything needs to be black or white, I like color sometimes.
I don't like letting all the cats out of a bag after they have been collected.
|One thing is certain, a trip I had planned for almost a year needed to be canceled. Something better is taking it's place and that trip will be rescheduled at a different time, for a different reason, and even go to a different place. With planning, I can take a train trip anytime to anywhere I want, and New Orleans really was never on my bucket list. So this is where we need to be to celebrate with our family, our way. In fact I'm kind of happy it's been removed, along with the anxiety!|
That last test will also be sending us on another journey come the fall. I was asked last August if I wanted to be referred and my answer at that time was "No, not really. We've been on that road before!" I have decided that come my next appointment, I am asking for that referral. I am not looking for a different outcome, it's just time to get some medical assistance in the direction is all.
So in between now and then, I am filling the time with things that matter.
Time on Our Journey Through LIFE!